Friday, February 29, 2008

How Luke Spends His Thursday Mornings.



At 8:45am, Luke and I head out on our walk to visit with his new physical therapist, Danielle, at the local state-operated CCS center. It takes about 30-40 minutes to get there on foot/in stroller from home and it's just a stone throw away from the Cal Poly dorms where I first lived in 96-97.


Luke spends about an hour with Danielle, working on his core strength and balance. We just started there in February and thus far he seems to enjoy the new environment (versus home PT) and having new options in toys. The pictures above are of Danielle helping Luke roll by maneuvering him on the balance ball. He will be able to continue at this center for many years to come and I believe the state-run preschool for special needs children is located in the same complex.

P.S. Luke does miss his first/prior PT Megan! She came out to our house every Tuesday and we always enjoyed her company. She's due to have her first baby (a boy!) in April and Luke can't wait to meet a new friend.

Monday, February 25, 2008

Current Favorite Pastime



Sock removal. It doesn't matter where Luke is- nothing is more exciting then capturing that left sock and freeing those five little piggies. The sock must then be punished for its oppressive crime so vigorous chewing commences...

Thursday, February 21, 2008

Our Blue-Eyed Boy

Dr. Stathacopoulos is Luke's pediatric opthomologist in SLO. She has been tracking Luke since June and is the primary decision maker for all things having to do with his vision. She is an excellent doctor and we are very fortunate to have a pediatric opthomologist in town (let alone one of her caliber) or we would have yet another reason to head bi-montly back up to Stanford. She was the one that regretfully informed me that Luke was essentially blind as well as who jubilantly declared him not to be!

Luke went in to see Dr. S. today for a regular follow-up. She was excited that Luke continues to show improvement and assured me that his vision is here to stay and will, hopefully, only get stronger. Her primary concern this time around is Luke's eyes' tendency to cross. If at times the right focus and the left crosses and vice versa, then nothing needs to be done immediately. However, if we (Matt and I) find that one eye is consistently turning in and not the other, then we have to move forward to correct it. If he relies on the left one, for example, and turns the right one in all the time then the right eye will actually become less effective. His brain will wire itself to permanently depend on the that left eye only. This is corrected by patching the dominent eye thus forcing the "crossed" eye to take control. The human brain never ceases to amaze...

Dr. S. saw both eyes each crossing and focusing while in her office and Matt and I, in the few hours since, have seen this as well. Our homework is still to watch him just to be sure. The picture below was taken as we left her office today. Notice the left eye "crossed" in.
And here's one that I took last week. Here the right eye is turned in.Due to the eyes crossing, it sounds like eye muscle surgery will be in Luke's future. It's a rather common surgery and even one that his Grandma Chrissy went through when she was cross-eyed as a young girl. Dr. S. didn't give any time frame for when this may be but I'm guessing not until he's bigger, stronger and his eyesite has somewhat stabilized.

As for the other odd things he does with his eyes (namely the looking down and to the sides,) the reasons are still unknown. Whether it is because of his eye muscles and the lack of control or because it's something his brain tells him to do because his field of vision is not "normal," we just have to wait until either Luke is old enough to be tested or he can verbally guide Dr. S. Regardless, Luke CAN SEE and continues to charm, entertain and amaze all he meets!

Revenge is sweet... or a fistful of dog hair.

After 9 months of being Rocco's unwilling object of affection...
...Luke finally loved back...
...and Rocco now knows he has been defeated.

Wednesday, February 20, 2008

New Toy & Tooth

Luke got a big package in the mail yesterday from Grammers Carole that was a late Valentine's Day gift. A little birdie told Grammers that Luke needed clothes (he seems to have grown out of his pants overnight!) so the gift replenished his quickly shrinking wardrobe. Also included was a fun new toy from Great Aunt Christine. Luke was very excited and general silliness ensued...While Luke giggled and tossed himself around in mom's lap (not the most calming behavior right before bedtime) mom finally got a snapshot of Luke's new "toothy" grin!

Monday, February 18, 2008

Honoring our presidents with a cookie.

After a full day of therapy, shopping and lunching with mom and dad, Luke got a special treat at dinner tonight- his first cookie! He very much enjoyed his dessert and was not pleased when, after 15 minutes of chewing, gumming, etc., mom finally called it a day.












Saturday, February 16, 2008

Dinner with the folks



Luke accompanied mom and dad to sushi last night and sat in his first restaurant high chair. It was slightly awkward but he's definitely getting more steady and filling the chair out better. The hostess was even kind enough to give him his very own placemat. Luke didn't partake in the food but he enjoyed chewing on his toys and watching dad.